HONORING LOSS OF YOUR DEMENTIA PERSON DURING HOLIDAYS

They are gone but never forgotten though the holidays are difficult for families and loved ones whose person with dementia has passed away.  There are ways to continue remembering and honoring that person by making memories in your home.

Begin by creating a memory space.  Set aside a small table or spot in your home with a candle, a framed photo and perhaps one or two items that remind you of your sister, parent, or friend.  Also, a favorite ornament, perfume bottle scarf, hat, or holiday card would be a loving gesture.  Lighting the candle before meals or when the family gathers can be a quiet ritual of remembrance.

Next, incorporate them into holiday traditions such as a special dish, song or decoration they enjoyed.  Share at the meal what they liked about the special soup or salad and how it became their favorite.  It will help others remember and talk about their warmth instead of having silence and sadness.

You could do or give something in their name such as donating to a cause they cared about, adopt a family for Christmas, or volunteer somewhere meaningful.  Then, write a note or tag that says “in loving memory of (name) and present it to their son, daughter, or friend.  Acts of kindness done in their memory turn into legacy

What about sharing memories while you gather?  Invite family and friends to each write one favorite memory or a funny story about your loved one and place them in a box.  Read them together or keep them to read privately when you need comfort.

Remember you don’t need to make it perfect. Grief has its own rhythm.  What matters is that you create space for both the sadness of missing them and the love that continues.

DEMENTIA PERSONS AND UPCOMING HOLIDAYS

           The holidays represent joy, tradition, and connection with loved ones. But for a person who has Dementia the holidays can feel confusing, overwhelming and even frightening.  The environment becomes louder busier, and less predictable.  Many people with dementia rely heavily on routine, familiarity, and calm surroundings.  When those supports are disrupted even with the best intentions, their coping abilities can become strained.

Large gatherings may create loneliness even in a crowd.  Think about it.  A person may see familiar faces but no longer recognizes relatives or friends who greet them with excitement.  This mismatch between others’ expectations and their own internal reality can trigger withdrawal, sadness, or even agitation.  They may feel like everyone else understands something they cannot, leading to isolation even when surrounded by loved ones.

The sensory experience of the holidays such as music, decorations, lights, food smells, and conversations with laughter can quickly become overwhelming.  What others deem festive can feel chaotic and confusing.  Noise and constant stimulation make it difficult for the brain with dementia to filter, process, or follow what is going on.  Agitation, pacing, or yelling may be their way of saying “this is too much.”

Furthermore, changes in routine and environment often cause distress.  Traveling to a family member’s home, rearranged furniture to make room for guests, or even a decorated living room can cause disorientation.  They may not know where the bathroom is, how to return to their chair, or even who lives in the home.  This can lead to clinginess, anxious wandering, or repeatedly asking to “go home” even if they are at home.

Another issue such as seeing relatives they haven’t seen in years can cause confusion or even embarrassment.  They may not remember names, relationships, or shared history which can make social interactions exhausting.

Plus, the person may become tired very quickly.  Dementia affects the brain’s energy regulation, so what seems like a brief gathering to us can feel like hours of effort to them.  Without planned quiet breaks, they can reach an overwhelm threshold that results in tears, aggression, or sudden shutdown.

What about the food on the table?  They may hallucinate or misinterpret what they see.  A cooked ham or turkey might be perceived as a live animal.  Decorative Santas may look threatening.  Shadowy lighting or flickering lights may be seen as frightening visual distortions. It is important not to argue or shame the person, instead gently validate the feeling and reduce exposure to whatever is causing the distress.

Not to forget about the caregivers. who may experience fatigue, guilt, and frustration as well.  They often feel pressured to maintain holiday traditions or please extended family.  But pushing the person with dementia to “behave,” or “fit in” or “remember” will increase stress for everyone and are not appropriate responses.  Caregivers need permission to simplify, decline invitations, shorten events, and prioritize everyone’s comfort and well-being especially for the person with dementia.

Above all, connection matters more than tradition.  A soft handhold, humming a familiar song, looking at old photo albums together, or sipping tea or hot chocolate in a calm room will be far more meaningful and successful than a big celebration.  The goal is not to recreate the holidays of the past, but to create moments of peace, presence and love in the here and now.